About This Study
Erythropoietic protoporphyria (EPP) or X-linked protoporphyria (XLP) are rare disorders that are passed down in families and cause a chemical to build up in the blood. This makes being in sunlight hurt their skin and can also affect their liver. The purpose of this study is to find out if a new medicine called bitopertin can help people with EPP or XLP stay in the sun longer without pain.
What Activities Are a Part of this Study?
- Informed Consent Review
- Use of Study Treatments or Placebo
- Use of Study Health Plans
- After Study Follow-Up Activities
- Review of Medical History
- Physical Examinations
- Phone Calls and/or Emails
- Study Visits and Consultations
- Surveys/Questionnaires
- Specimen Sample Collection
- Diary/e-Diary Writing or Recordings
Age & Gender
- 12 - 100+ years old
- All Genders
Language
- This study enrolls English speakers only
Additional Study Information
- Compensation Offered
- Reimbursement offered
Study Locations
- Greater Winston-Salem, NC