About This Study
The purpose of this study is to understand the experiences of people with a special type of inherited kidney disease. Taking part in this research will involve one 60-minute interview.
As a child received genetic testing and diagnosed with autosomal dominant tubulointerstitial kidney disease due to UMOD or MUC1 mutations. Study team will discuss study details with you.
What Activities Are a Part of this Study?
- Informed Consent Review
- Surveys/Questionnaires
- Laboratory and Imaging Tests
- Specimen Sample Collection
Age & Gender
- 5 - 100 years old
- All Genders
Language
- This study enrolls English and Spanish speakers
Additional Study Information
- No compensation provided
- No reimbursement offered
Study Locations
- Greater Winston-Salem, NC