Tracking Heart Disease Care in ATTR-CM Patients

About This Study

Transthyretin-mediated amyloidosis with cardiomyopathy (ATTR-CM) is a disease where a protein builds up in the heart and makes it harder for the heart to pump blood. This study aims to learn more about this heart condition and how it is treated in real life. Researchers will collect information from medical records and patient surveys over time. This may help improve care for people with this condition in the future. This study is for volunteers with ATTR-CM who have started treatment within the last 90 days.

What Activities Are a Part of this Study?

Informed Consent Review
Use of Study Treatments or Placebo
Use of Study Health Plans
After Study Follow-Up Activities
Review of Medical History
Physical Examinations
Phone Calls and/or Emails
Study Visits and Consultations
Surveys/Questionnaires

Age & Gender

18 - 100+ years old
Female
Male

Language

This study enrolls English speakers only

Additional Study Information

Compensation Offered
No reimbursement offered

Study Locations

Greater Charlotte, NC

Study Topics

Heart Health Rare Disease

Study Locations and Contacts

Study Information
IRB Number: IRB00143143
NCT Number: N/A

Helpful Information

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