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https://carolinashealthcare.org.coveo.com

Helping Families Make Kidney Treatment Choices

Study Leader

Susan Massengill, MD


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    About This Study

    Nephrotic syndrome is a kidney problem that makes your body lose protein in your pee, causing swelling and other health issues. This study aims to help families choose the best treatments for this condition. We are looking for volunteers with children who have nephrotic syndrome. By sharing your experiences, you will help us find better ways to support families in making treatment decisions.

    What Activities Are a Part of this Study?

    • Informed Consent Review
    • Focus Group/Interview
    • Review of Medical History
    • Phone Calls and/or Emails
    • Study Visits and Consultations
    • Surveys/Questionnaires

    Age & Gender

    • 14 - 20 years old
    • All Genders

    Language

    • This study enrolls English speakers only

    Additional Study Information

    • Compensation Offered
    • No reimbursement offered

    Study Locations

    • Greater Charlotte, NC

    Study Topics

    Children, Infants, Teen Health Kidneys, Liver, Pancreas

    Study Locations and Contacts

    • Greater Charlotte, NC: Megan Care Megan.Care@atriumhealth.org
    • Study Information
    • IRB Number: IRB00125445

    Helpful Information

    Have questions? See if your question is answered in our most common question and answers section. Need to know what something means? Browse the dictionary for explanation of common clinical study terms.

    FAQs Dictionary


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