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https://atriumhealthproduction2e3o79eek.orghipaa.coveo.com

Tracking the Long-Term Safety of the Medicine AGAMREE

Study Leader

Urvi Desai, MD


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    About This Study

    Duchenne muscular dystrophy (DMD) is a disease that makes muscles get weaker over time. The purpose of this study is to track the long-term safety of a medicine called AGAMREE for this disease. People in the study will have yearly checkups and answer questions about their health. We are looking for volunteers who have DMD and are currently taking AGAMREE.

    What Activities Are a Part of this Study?

    • Informed Consent Review
    • Use of Study Treatments or Placebo
    • After Study Follow-Up Activities
    • Review of Medical History
    • Physical Examinations
    • Phone Calls and/or Emails
    • Study Visits and Consultations
    • Surveys/Questionnaires
    • Laboratory and Imaging Tests
    • Specimen Sample Collection

    Age & Gender

    • 2 - 100+ years old
    • Male at Birth

    Language

    • This study enrolls English and Spanish speakers

    Additional Study Information

    • Compensation Offered
    • Reimbursement offered

    Study Locations

    • Greater Charlotte, NC

    Study Topics

    Bones, Joints, Muscles Children, Infants, Teen Health Genetic Disorders Men's Health Rare Disease

    Study Locations and Contacts

    • Greater Charlotte, NC: Megan Care Megan.Care@advocatehealth.org
    • Study Information
    • IRB Number: IRB00122114

    Helpful Information

    Have questions? See if your question is answered in our most common question and answers section. Need to know what something means? Browse the dictionary for explanation of common clinical study terms.

    FAQs Dictionary


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