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https://carolinashealthcare.org.coveo.com

Studying Cystic Fibrosis Treatments for People without Modulators

Study Leader

Chad Marion, DO


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    About This Study

    The purpose of this study is to collect health information and samples from people who have cystic fibrosis (CF). By doing this, researchers can learn more about CF and find new ways to treat it. We also want to help people with CF understand what it's like to be part of a research study. We are looking for volunteers who have CF and do not take a certain type of medicine called CFTR modulators.

    What Activities Are a Part of this Study?

    • Informed Consent Review
    • After Study Follow-Up Activities
    • Review of Medical History
    • Physical Examinations
    • Study Visits and Consultations
    • Surveys/Questionnaires
    • Laboratory and Imaging Tests
    • Specimen Sample Collection
    • Diary/e-Diary Writing or Recordings

    Age & Gender

    • 12 - 100 years old
    • All Genders

    Language

    • This study enrolls English and Spanish speakers

    Additional Study Information

    • Compensation Offered
    • Reimbursement offered

    Study Locations

    • Greater Charlotte, NC
    • Greater Winston-Salem, NC

    Study Topics

    Genetic Disorders Lung Health Rare Disease

    Study Locations and Contacts

    • Greater Charlotte, NC: Crystal Alston crystal.alston@advocatehealth.org
    • Greater Winston-Salem, NC: Anna Pippins apippins@wakehealth.edu
    • Study Information
    • IRB Number: IRB00117486

    Helpful Information

    Have questions? See if your question is answered in our most common question and answers section. Need to know what something means? Browse the dictionary for explanation of common clinical study terms.

    Answers to Common Questions What Do These Words Mean?

    I'm Interested
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