About This Study
The purpose of this study is to gather information on people with cystic fibrosis through a patient registry. The patient registry helps track important changes in people with cystic fibrosis. It also helps doctors understand the disease better, improve treatments, and help patients live longer.
What Activities Are a Part of this Study?
- Informed Consent Review
- Review of Medical History
Age & Gender
- 0 - 20 years old
- All Genders
Language
- This study enrolls English and Spanish speakers
Additional Study Information
- No compensation provided
- No reimbursement offered
Study Locations
- Greater Charlotte, NC
Study Topics
Children, Infants, Teen Health Genetic Disorders Lung Health